Turn of Time
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In January, a series of events turned my life upside down, but I landed on my feet, as I knew I would, because I always do.
My two special needs kids (Karie with Prader-Willi Syndrome and John with Fetal Alcohol Syndrome) were living together in their own apartment, with 4 support staff (and myself) providing them with 24/7 care. Karie was in a day program with a 1-to-1 support person, and John was in a supported work program with a job coach. Here's what transpired in January:
John had to leave his job program due to lack of stable work environment.
Karie had to leave her day program due to an unsafe program situation.
They both had to move from their apartment because new management decided not to renew any leases so they could remodel and increase the rent.
Two of our four staff left, one due to injuries at another job, one for better pay with good benefits elsewhere. They had been getting the kids ready in the morning and transporting them to and from their programs. So I could not initiate new programs for the kids, and I became their day program and job coach at home.
New apartment turned out to be a nightmare, with buckling floor, faulty electrical wiring, and roach infestation. Luckily we found out before they moved in, but after signing the lease and paying rent.
My son (Chris, the computer programmer) flew down to help with the move, and we put everything into storage and the two "kids" moved in with me.
By the time Covid-19 hit, we had already settled into an easy routine of sleeping in late in the morning, taking leisurely walks with the dogs, taking naps, watching movies and playing games together. I'm not driving much anymore because of my vision, so we were pretty much home-bound already. Our two staff come every afternoon to help out, which is a blessing, because each of the kids requires close supervision for various reasons due to their disabilities.
So, we are doing fine. Our two staff (a mother-daughter team who have been with us for 10 years) have vowed to remain in lock down, except for coming to our house, and we also are in lock down, so no one can spread anything to anyone. Of course, we take all the precautions necessary with getting medications and groceries.
My daughter is waiting for me to fix her a snack and watch a movie with her, so I guess I won't be solving any puzzles today. I'm glad to see so many of my Jigidi friends still hanging out here. And what a great place to hang out, don't you think?
The song I chose is "Turn Turn Turn" by The Byrds. Enjoy!
My two special needs kids (Karie with Prader-Willi Syndrome and John with Fetal Alcohol Syndrome) were living together in their own apartment, with 4 support staff (and myself) providing them with 24/7 care. Karie was in a day program with a 1-to-1 support person, and John was in a supported work program with a job coach. Here's what transpired in January:
John had to leave his job program due to lack of stable work environment.
Karie had to leave her day program due to an unsafe program situation.
They both had to move from their apartment because new management decided not to renew any leases so they could remodel and increase the rent.
Two of our four staff left, one due to injuries at another job, one for better pay with good benefits elsewhere. They had been getting the kids ready in the morning and transporting them to and from their programs. So I could not initiate new programs for the kids, and I became their day program and job coach at home.
New apartment turned out to be a nightmare, with buckling floor, faulty electrical wiring, and roach infestation. Luckily we found out before they moved in, but after signing the lease and paying rent.
My son (Chris, the computer programmer) flew down to help with the move, and we put everything into storage and the two "kids" moved in with me.
By the time Covid-19 hit, we had already settled into an easy routine of sleeping in late in the morning, taking leisurely walks with the dogs, taking naps, watching movies and playing games together. I'm not driving much anymore because of my vision, so we were pretty much home-bound already. Our two staff come every afternoon to help out, which is a blessing, because each of the kids requires close supervision for various reasons due to their disabilities.
So, we are doing fine. Our two staff (a mother-daughter team who have been with us for 10 years) have vowed to remain in lock down, except for coming to our house, and we also are in lock down, so no one can spread anything to anyone. Of course, we take all the precautions necessary with getting medications and groceries.
My daughter is waiting for me to fix her a snack and watch a movie with her, so I guess I won't be solving any puzzles today. I'm glad to see so many of my Jigidi friends still hanging out here. And what a great place to hang out, don't you think?
The song I chose is "Turn Turn Turn" by The Byrds. Enjoy!
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