Back just for a little while
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At long last, I am on Jigidi for only a brief time. Every day I think about going on to say hello, but every day I lack the energy or pain control to sit at the computer. After 13 years of my doctors chasing the wrong issue (large fiber neuropathy), I was finally diagnosed by my neurologist with small fiber neuropathy, which symptoms mimic in large part the symptoms of MS and has the weirdest symptoms (can’t regulate my body temperature, static electricity up and down my body, difficulty swallowing, etc.). Then, after almost a year of continual painful stabbing in my eyes and an inability to be outside in daylight (another reason to want to be back in Oregon where it rains a lot), the same neurologist diagnosed me with ocular migraines. The treatment is generic sumatriptan ($10/month), the brand name is Imitrex ($1,000/month). It’s been a miracle worker it's always in my possession. My neurologist is out of network (except for getting the diagnosis), so I'm paying him out of pocket. I'm scheduled to see him Wednesday because he recently became certified to prescribe medical marijuana. The citizens were forced to amend the constitution because the Florida legislature refused to pass any law in favor of it. It's taken two years to get just five dispensaries going, and one of them just went out of business, leaving thousands of patients without doctors and out a lot of money. Fortunately, mine is a well-known specialist in his field, and such a compassionate man that he only charges patients without insurance $75 to see him. Of course, this being Florida, all the "doctors" who lost their licenses in other states have flocked here, and they're creating a mess of things. I've yet to find out all the costs, but I know it's going to be steep. If it helps me, I'd sell my two remaining cats to get it (only kidding, Charlotte and Schnellie).
Still and all, I’m trying to maintain my sense of humor. It hasn’t been easy to do so, as my world keeps getting ever more compressed and my energy ever more dissipated. No more Jigidi, no more movies or restaurants, very little reading, no computers except brief exchanges and to pay bills. And I haven’t played duplicate bridge since 2005. I’ve got so many hours of shows recorded on my DVR that I’ll most likely never get to watch them all, and numerous books I’ve ordered throughout the year that I’ll be lucky to read half of them. But the really good news? We’re a mere three weeks away from the 2018 hurricane season. Yippee. Still, it isn't all doom and gloom. I have a couple of Jigidi friends who are tried and true that I chat with, along with my Oregon friends.
If anyone wants to contact me, I’d welcome that, with the caveat that it might take a while to respond. I do much better on the phone so I don't have to sit at my computer.
I miss all of you and wish I could still be a part of my wonderful and kind Jigidi family. Maybe one day I will.
Take care. Gail
Still and all, I’m trying to maintain my sense of humor. It hasn’t been easy to do so, as my world keeps getting ever more compressed and my energy ever more dissipated. No more Jigidi, no more movies or restaurants, very little reading, no computers except brief exchanges and to pay bills. And I haven’t played duplicate bridge since 2005. I’ve got so many hours of shows recorded on my DVR that I’ll most likely never get to watch them all, and numerous books I’ve ordered throughout the year that I’ll be lucky to read half of them. But the really good news? We’re a mere three weeks away from the 2018 hurricane season. Yippee. Still, it isn't all doom and gloom. I have a couple of Jigidi friends who are tried and true that I chat with, along with my Oregon friends.
If anyone wants to contact me, I’d welcome that, with the caveat that it might take a while to respond. I do much better on the phone so I don't have to sit at my computer.
I miss all of you and wish I could still be a part of my wonderful and kind Jigidi family. Maybe one day I will.
Take care. Gail
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